Guvernul se al\u0103tur\u0103, ca \u00een fiecare an, institu\u0163iilor publice care sus\u0163in campania de con\u015ftientizare a bolii Batten, o boal\u0103 rar\u0103 care afecteaz\u0103 copiii de v\u00e2rst\u0103 mic\u0103, a transmis Executivul. Cu aceast\u0103 ocazie, Palatul Victoria va fi iluminat joi sear\u0103 \u00een culoarea turcoaz, \u00eencep\u00e2nd cu ora 21.00, \u00een semn de solidaritate fa\u0163\u0103 de pacien\u0163ii care sufer\u0103 de aceast\u0103 boal\u0103.<\/p>\n
Guvernul transmite c\u0103 un diagnostic de boal\u0103 rar\u0103 cum este boala Batten aduce mult\u0103 suferin\u0163\u0103 copiilor afecta\u0163i \u015fi familiilor lor, av\u00e2nd \u00een vedere consecin\u0163ele neurodegenerative ale bolii, speran\u0163a sc\u0103zut\u0103 de via\u0163\u0103 a pacien\u0163ilor \u015fi op\u0163iunile \u00eenc\u0103 limitate de tratament \u00eempotriva acestei afec\u0163iuni.\u00a0<\/p>\n
\u201eFiecare caz \u00eenseamn\u0103 o via\u0163\u0103 care conteaz\u0103, chiar dac\u0103 vorbim despre pacien\u0163i cu boli rare, iar preocup\u0103rile noastre \u00een materie de s\u0103n\u0103tate vizeaz\u0103 asigurarea accesului la servicii de s\u0103n\u0103tate pentru fiecare cet\u0103\u0163ean \u015fi la timp, pentru diagnosticare din primele faze ale bolii \u015fi acces la tratamentele existente.\u00a0<\/p>\n
Ordonan\u0163a de Urgen\u0163\u0103 pe care Guvernul a aprobat-o \u00een acest sens, \u00een luna aprilie, cu mai multe m\u0103suri \u00een domeniul s\u0103n\u0103t\u0103\u0163ii, vine \u00een sprijinul pacien\u0163ilor cu boli rare \u015fi alte categorii de boli cronice, care vor beneficia de efectuarea investiga\u0163iilor paraclinice \u00een regim ambulatoriu \u00een cel mult 5 zile, chiar dac\u0103 furnizorul aflat \u00een rela\u0163ie contractual\u0103 cu casa de asigur\u0103ri de s\u0103n\u0103tate a epuizat fondurile lunare contractate la momentul efectu\u0103rii analizelor respective. Solu\u0163ii exist\u0103 \u015fi vrem s\u0103 ne asigur\u0103m astfel c\u0103 dreptul la s\u0103n\u0103tate al fiec\u0103rui rom\u00e2n nu r\u0103m\u00e2ne doar \u00een teorie\u201d, a declarat premierul Nicolae Ciuc\u0103, potrivit unui comunicat al Executivului.\u00a0<\/p>\n
Source URL: https:\/\/adevarul.ro\/politica\/palatul-victoria-iluminat-in-turcoaz-in-cadrul-2172371.html<\/p>\n","protected":false},"excerpt":{"rendered":"
Guvernul se al\u0103tur\u0103, ca \u00een fiecare an, institu\u0163iilor publice care sus\u0163in campania de con\u015ftientizare a bolii Batten, o boal\u0103 rar\u0103 care afecteaz\u0103 copiii de v\u00e2rst\u0103 mic\u0103, a transmis Executivul. Cu aceast\u0103 ocazie, Palatul Victoria va fi iluminat joi sear\u0103 \u00een culoarea turcoaz, \u00eencep\u00e2nd cu ora 21.00, \u00een semn de solidaritate fa\u0163\u0103 de pacien\u0163ii care sufer\u0103 […]<\/p>\n","protected":false},"author":1,"featured_media":342499,"comment_status":"open","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2],"tags":[19],"class_list":["post-342498","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-politics","tag-adevarul"],"_links":{"self":[{"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=\/wp\/v2\/posts\/342498","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=342498"}],"version-history":[{"count":0,"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=\/wp\/v2\/posts\/342498\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=\/wp\/v2\/media\/342499"}],"wp:attachment":[{"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=342498"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=342498"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=342498"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}