{"id":1768744,"date":"2026-02-11T07:17:53","date_gmt":"2026-02-11T04:17:53","guid":{"rendered":"https:\/\/analyse.optim.biz\/?p=1768744"},"modified":"2026-02-11T07:17:53","modified_gmt":"2026-02-11T04:17:53","slug":"program-national-in-premiera-la-spitalul-cfr-timisoara-centru-pentru-pacienti-cu-o-boala-rara","status":"publish","type":"post","link":"https:\/\/analyse.optim.biz\/?p=1768744","title":{"rendered":"Program na\u021bional \u00een premier\u0103 la Spitalul CFR Timi\u0219oara. Centru pentru pacien\u021bi cu o boal\u0103 rar\u0103"},"content":{"rendered":"

[analyse_image type=”featured” src=”https:\/\/www.opiniatimisoarei.ro\/wp-content\/uploads\/2022\/12\/pacienti-bolnavi-salon-728×336.jpghttps:\/\/www.opiniatimisoarei.ro\/wp-content\/uploads\/2022\/12\/pacienti-bolnavi-salon.jpg”]<\/p>\n

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TIMISOARA<\/strong>. Va fi derulat \u00een premier\u0103 la Spitalul Clinic C.F. Timi\u0219oara un program na\u021bional de s\u0103n\u0103tate. Unitatea sanitar\u0103 devine centru pentru pacien\u021bii cu Hemoglobinurie paroxistic\u0103 nocturn\u0103.<\/p>\n

Aceasta intr\u0103 \u00een categoria bolilor rare.<\/p>\n

CITE\u0218TE \u0218I:<\/span>\u00cenghesuial\u0103 la amenajarea unui parc sportiv \u0219i de joac\u0103 la Timi\u0219oara. 8 constructori vor contractul de 1 milion \u0219i jum\u0103tate de euro<\/a><\/strong><\/p>\n

Afec\u021biunea se manifest\u0103 prin distrugerea accelerat\u0103 a globulelor ro\u0219ii. Boala este asociat\u0103, cel mai adesea, cu tromboze \u0219i insuficien\u021b\u0103 medular\u0103.<\/p>\n

Afec\u021biunea este subdiagnosticat\u0103 \u00een Rom\u00e2nia din cauza inciden\u021bei rare a bolii. De cele mai multe ori, este depistat\u0103 tardiv, atunci c\u00e2nd posibilit\u0103\u021bile de interven\u021bie \u0219i tratament sunt limitate.<\/p>\n

\u201eHPN are simptome nespecifice. Vorbim despre anemii f\u0103r\u0103 o cauz\u0103 evident\u0103 \u0219i de episoade trombotice neobi\u0219nuite. Practic, avem parametri hematologici care ies din limite, \u0219i aici m\u0103 refer la hemoglobin\u0103 sc\u0103zut\u0103, modificarea valorii trombocitelor, leucocite mici, un deficit de fier major, adic\u0103 o feritin\u0103 seric\u0103 sc\u0103zut\u0103, anemie hemolitic\u0103 \u0219i tromboze ap\u0103rute la v\u00e2rste sub 45 de ani, \u00een teritorii neobi\u0219nuite, \u00een zone atipice, de exemplu la nivelul venelor abdominale sau cerebrale si afectarea m\u0103duvei osoase. De aceea, consider\u0103m HPN-ul ca fiind o boal\u0103 cu risc vital<\/strong>\u201d, spune dr. Aura Ioana Hanci, medic specialist Hematologie \u2013 Spitalul Clinic C.F. Timi\u0219oara.<\/p>\n

Pe l\u00e2ng\u0103 aceste manifest\u0103ri, se mai pot asocia oboseala constant\u0103, tahicardia, dispneea, durerile abdominale, spasmele esofagiene \u0219i hemoglobinuria (urina \u00eenchis\u0103 la culoare, mai ales diminea\u021ba).<\/p>\n

Din aceast\u0103 lun\u0103, \u00een cadrul Spitalului Clinic C.F. Timi\u0219oara, va \u00eencepe derularea Programului Na\u021bional de depistare a persoanelor cu Hemoglobinurie paroxistic\u0103 nocturn\u0103.<\/p>\n

\u201eSuntem printre pu\u021binele unit\u0103\u021bi sanitare din \u021bar\u0103 \u00een care se deruleaz\u0103 un asemenea program, inclus \u00een Programul Na\u021bional de Tratament pentru Boli Rare. Recunoa\u0219terea precoce a afec\u021biunii \u0219i accesul rapid la tratament specific sunt extrem de importante. \u00cen lipsa acestora, prognosticul este rezervat. \u00cen perioada urm\u0103toare, avem \u00een vedere \u0219i alte programe na\u021bionale pe care s\u0103 le implement\u0103m \u00een cadrul unit\u0103\u021bii sanitare<\/strong>\u201d, spune dr. Cosmin Gridan, manager \u2013 Spitalul Clinic C.F. Timi\u0219oara.<\/p>\n

Programul na\u021bional pentru hemoglobinuria paroxistic\u0103 nocturn\u0103 presupune identificarea pacien\u021bilor pe baza unui profil specific \u0219i testarea acestora. Analizele prelevate sunt trimise c\u0103tre unit\u0103\u021bi sanitare specializate \u00een stabilirea diagnosticului, unde se utilizeaz\u0103 o tehnic\u0103 specific\u0103, citometria \u00een flux, care eviden\u021biaz\u0103 absen\u021ba unor proteine de pe suprafa\u021ba celulelor sanguine.<\/p>\n

\u00cen cadrul Spitalului Clinic CF Timi\u0219oara func\u021bioneaz\u0103 un Cabinet de Hematologie. Consultul este gratuit \u00een baza trimiterii de la medicul de familie.<\/p>\n

***<\/p>\n

Mai<\/span>multe<\/span>g\u0103si\u021bi<\/span> pe pagina noastr\u0103<\/span><\/span>\u00a0de Facebook opiniatimisoarei.ro<\/a>!<\/strong><\/p>\n

Dac\u0103<\/span>a\u021bi<\/span> fost martorii unui eveniment sau<\/span>ai<\/span> unei situa\u021bii<\/span>neobi\u0219nuite<\/span>care<\/span> ar putea<\/span> deveni subiect de \u0219tire<\/span>, contacta\u021bi<\/span>-ne la<\/span>[email\u00a0protected]<\/a>,<\/span>\u00a0 pe FB<\/a>sau pe contul nostru de<\/span>Instagram<\/a>!<\/strong><\/p>\n

CITESTE SI<\/span>: Afli primul tot ceea ce se intampla cu adevarat important in Timisoara si in regiune cu Aplicatia de stiri Opinia Timisoarei. 3 tipuri de alerte te tin mereu conectat la evenimente. Descarca gratuit Aplicatia OT aici!<\/a><\/strong><\/p>\n<\/div>\n

[analyse_source url=”https:\/\/www.opiniatimisoarei.ro\/program-national-in-premiera-la-spitalul-cfr-timisoara-centru-pentru-pacienti-cu-o-boala-rara\/11\/02\/2026″]<\/p>\n","protected":false},"excerpt":{"rendered":"

[analyse_image type=”featured” src=”https:\/\/www.opiniatimisoarei.ro\/wp-content\/uploads\/2022\/12\/pacienti-bolnavi-salon-728×336.jpghttps:\/\/www.opiniatimisoarei.ro\/wp-content\/uploads\/2022\/12\/pacienti-bolnavi-salon.jpg”] TIMISOARA. Va fi derulat \u00een premier\u0103 la Spitalul Clinic C.F. Timi\u0219oara un program na\u021bional de s\u0103n\u0103tate. Unitatea sanitar\u0103 devine centru pentru pacien\u021bii cu Hemoglobinurie paroxistic\u0103 nocturn\u0103. Aceasta intr\u0103 \u00een categoria bolilor rare. CITE\u0218TE \u0218I:\u00cenghesuial\u0103 la amenajarea unui parc sportiv \u0219i de joac\u0103 la Timi\u0219oara. 8 constructori vor contractul de 1 milion \u0219i […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[89],"tags":[226,190],"class_list":["post-1768744","post","type-post","status-publish","format-standard","hentry","category-romania","tag-crawlmanager","tag-opiniatimisoarei-ro"],"_links":{"self":[{"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=\/wp\/v2\/posts\/1768744","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1768744"}],"version-history":[{"count":0,"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=\/wp\/v2\/posts\/1768744\/revisions"}],"wp:attachment":[{"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1768744"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1768744"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/analyse.optim.biz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1768744"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}